Our Aim
At Thalassemia Relief, our main goal is to treat patients with the chronic long life threatening decease condition beta thalassemia to provide Free Blood transfusions,, blood tests, thalassemia specialist appointments with consultants, scans, iron chelation therapies, x rays, transplant therapies, transport, food, shelter and accommodation, clean water, education, awareness, employment support and medicine.
We as a charity organisation will with every effort and determination provide the best level of support for the sick and poor for them to sustain a healthier brighter future that they can embrace.
Disabled, widows, elderly, orphans and people with all age ranges will be given support and treatments to enjoy living free from sickness and poverty to sustain a happier future.
We want to help the poor and sick to get the best medical treatment, the children to be given the best standard of education, the unemployed to be-educated, trained and be transitioned in to professional jobs and sectors. To be financially self sufficient and be independent. The different causes are in great need of donations and with your help we can achieve this
Navigate on our website to follow our youtube channel and social media accounts to view/ see how your donations are helping to bring relief to the poor/sick right now. You can make a huge difference to peoples lives. Your donation can be the difference between life and death. Be mindful that your contributions will bring blessings to others and yourself.
“Be the change you want to see in the world”
Illustrated example:
Aisha and Hassan each have one gene that makes the usual amount of red blood cells and one altered or ‘thalassaemia’ gene that makes less red blood cells than usual. Aisha and Hassan are thalassaemia carriers. Being a carrier is sometimes also referred to as having thalassaemia trait or thalassaemia minor.
People who are carriers are well in themselves. They are healthy and in fact they may not even know they are carriers. But they can pass on the altered gene to their children.
A child can only get beta thalassaemia major if they get TWO altered genes – one from their father and one from their mother.
Each time Aisha and Hassan have a baby, there is
A: 1 in 4 (25%) chance that their baby will inherit beta thalassaemia major.
B: 1 in 2 (50%) chance that their baby will be a thalassaemia carrier.
C:1 in 4 (25%) chance that their baby will be completely free from thalassaemia.
These chances are the same each time Aisha and Hassan have a baby. Their next child could have beta thalassaemia major like their child Imran, be a carrier or be completely free from thalassaemia.
Due to the autosomal recessive pattern of inheritance, a person living with thalassaemia trait may pass the condition on to their children. If both parents are living with thalassaemia trait, there is a risk that their children will be carriers for thalassaemia or have thalassaemia major.
What is Beta Thalassemia?
Thalassaemia forms part of the haemoglobinopathies, a group of genetic blood disorders affecting the production of haemoglobin.
Haemoglobin is the protein present in red blood cells responsible for transporting oxygen around the body. In thalassaemia, the production of the globin chains of haemoglobin is absent or reduced. This can result in severe anaemia.
Thalassaemia is inherited from parents; it is not contagious, or a virus acquired from blood transfusions. It is passed on equally by men and women.
How is Thalassaemia Inherited?
Thalassaemia is passed from parents to children through genes. A gene is a small packet of information that controls a characteristic in your body, by making very specialised protein molecules.
It is a section of DNA, the unique molecule that makes up your chromosomes. Genes make us who we are; they determine our characteristics, for example, the colour of our hair, our height and so on.
Genes work in pairs: for everything we inherit, we get 1 gene from our mother and 1 gene from our father. In some cases, a gene can be missing, defective or altered from the usual form. This can cause disease.
In the case of a person with beta thalassaemia major, they have inherited two altered ß-globin genes from their parents (one from the mother and one from the father). As a result of the altered – sometimes termed ‘mutated’ genes, the person cannot produce enough ß-globin, which forms part of haemoglobin. This is the substance in the red blood cell that carries oxygen.
How prevalent is Thalassaemia?
It used to be the case that thalassaemia was confined to certain geographic regions. This is because it initially developed as an evolutionary response to malaria; thus, it mainly affected people from malarial regions such as Asia and South East Asia, the Mediterranean, South America, the Caribbean, Northern and Central and the Middle East.
If a person was a thalassaemia carrier, it appeared to give them some protection against malaria. The human body had developed an effective evolutionary defence but had not anticipated what might happen if two carriers had children. This is where the issue arose, in the form of beta thalassaemia major.
In fact, it is estimated that 700,000 babies, severely affected by thalassaemia, are born globally each year.
Sadly, this underestimates the real number because in many poorer countries, cases are not always reported. According to a publication written by the Royal College of Obstetrics and Gynaecologists on the management of beta thalassaemia in pregnancy, (2014) it is estimated that there are 100 million people worldwide living with thalassaemia trait (asymptomatic carriers).
Whilst it was initially prevalent in the regions mentioned, this is no longer the case, and anyone can be at risk. Due to several socio-economic and demographic changes – for example, the migration of communities over the centuries and the rise of inter-racial families – thalassaemia is no longer confined to people from certain ethnicities.
This is why everyone should get tested. As said earlier, because carriers are generally healthy, you may not know if you are a carrier unless you have the test.
What is Beta Thalassemia?
Thalassaemia forms part of the haemoglobinopathies, a group of genetic blood disorders affecting the production of haemoglobin.
Haemoglobin is the protein present in red blood cells responsible for transporting oxygen around the body. In thalassaemia, the production of the globin chains of haemoglobin is absent or reduced. This can result in severe anaemia.
Thalassaemia is inherited from parents; it is not contagious, or a virus acquired from blood transfusions. It is passed on equally by men and women.
How is Thalassaemia Inherited?
Thalassaemia is passed from parents to children through genes. A gene is a small packet of information that controls a characteristic in your body, by making very specialised protein molecules.
It is a section of DNA, the unique molecule that makes up your chromosomes. Genes make us who we are; they determine our characteristics, for example, the colour of our hair, our height and so on.
Genes work in pairs: for everything we inherit, we get 1 gene from our mother and 1 gene from our father. In some cases, a gene can be missing, defective or altered from the usual form. This can cause disease.
In the case of a person with beta thalassaemia major, they have inherited two altered ß-globin genes from their parents (one from the mother and one from the father). As a result of the altered – sometimes termed ‘mutated’ genes, the person cannot produce enough ß-globin, which forms part of haemoglobin. This is the substance in the red blood cell that carries oxygen.
How prevalent is Thalassaemia?
It used to be the case that thalassaemia was confined to certain geographic regions. This is because it initially developed as an evolutionary response to malaria; thus, it mainly affected people from malarial regions such as Asia and South East Asia, the Mediterranean, South America, the Caribbean, Northern and Central and the Middle East.
If a person was a thalassaemia carrier, it appeared to give them some protection against malaria. The human body had developed an effective evolutionary defence but had not anticipated what might happen if two carriers had children. This is where the issue arose, in the form of beta thalassaemia major.
In fact, it is estimated that 700,000 babies, severely affected by thalassaemia, are born globally each year.
Sadly, this underestimates the real number because in many poorer countries, cases are not always reported. According to a publication written by the Royal College of Obstetrics and Gynaecologists on the management of beta thalassaemia in pregnancy, (2014) it is estimated that there are 100 million people worldwide living with thalassaemia trait (asymptomatic carriers).
Whilst it was initially prevalent in the regions mentioned, this is no longer the case, and anyone can be at risk. Due to several socio-economic and demographic changes – for example, the migration of communities over the centuries and the rise of inter-racial families – thalassaemia is no longer confined to people from certain ethnicities.
This is why everyone should get tested. As said earlier, because carriers are generally healthy, you may not know if you are a carrier unless you have the test.
Our Projects
At Thalassemia Relief our inevitable goal is to reach out to all causes of sick, poverty-stricken people. We aim to tackle these causes with your help and support but keeping Thalassemia as our priority. The country we have started to support is Pakistan but with your support we want to deal with the causes in India, Bangladesh, Iraq where there is a significant number of people with Beta Thalassemia are living under the severe poverty line.
Areas in Pakistan where the charity is currently working all over targeting small rural villages and towns starting with Azad Kashmir, Dina, Jehlum, Attock, Multan, Muzzafragarh, Kotli, Tharparkar Desert Karachi including all minor remote villages surrounding these areas. These locations can change from time to time depending of the need in demand in other poor areas.
At this charity we pay for life saving treatments IE Blood transfusions, Iron chelation medication scans, blood tests, specialist appointments and all other co morbidities will be paid for that is caused by Beta thalassemia.
The charity also Pays for food shelter and education all life saving necessities.
There are between 500,000 to 900,000 children born and registered with the condition in pakistan unable to afford and sustain basic treatment. Which inevitably brings on premature deaths.
Due to the lack of education, resources, facilities and training adults are forced due to there financial responsibilities to undertake low pay jobs and work in slavery like unsafe conditions with inadequate pay which makes them more vulnerable as the poor and needy. Thalassemia relief has the initiative to change that. We aim to achieve this by sponsoring adults onto employment training schemes and further education institutes for individuals to gather vital skills and experience to become financial dependant. The field could be of any from something such as a tailor, driving a taxi, carpenter, plasterer, painter, builder or even starting a small business etc. The poor and needy with no financial stability don’t know where there next meal will come from, so the beneficial initiative is to provide them with job security to be able to provide for themselves and there families, which will give them self esteem and pride. This course of action will give them mental/ physical stability which they are so desperately in need of after many years of hand outs.
The charity will then move on to a strategic plan by working with local partners in setting up agencies to assist with adults by providing them with long term skills to acquire jobs this will give them a sense positive structure and a sense of being as these people where untouchable for years before. This will give people a second lease of life as to prior wouldn’t dare to be seen living in a much brighter/better circumstances.
“No act of kindness, no matter how small is wasted”
Secure & Safe Accommodation
A safe & secure place to live where people can be protected from external danger of society is a luxury that not all can afford.
Although this is a common cause for many charity organisations thalassemia relief aims to take an effective strategic approach for ample accommodation which suites the needs and requirements of the homeless and displaced. Instead of the common inadequate short lived support such as shared over cramped housing, tents and straw houses, we aim to give the needy functional high standard housing/ accommodation where they can turn a house into a home. We will be giving them support to prosper from living in a sustainable accommodation and guide them to buy a house to similar quality or better.
Houses and flats will be built in townships developed in association partnership with industry led property associations, for the poor and most needy. The best suited accommodation will be provided to each person depending on their needs and requirements. The housing will come will be inline with national regs and have state of the art facilities and all necessities.
“Bring the change you want to see in the world”
The charity has set out a provision plan to provide the disadvantaged children a westernised education system of national good standard curriculum, education is the foundation of all routes to success. This will be a core programme to prevent poverty exhaust its numbers. The charity will team up with local and national education institutes and schools to embed.
High level of skills and education to support them for further education in life.
Thalassemia relief has done extensive research in order to conduct and combat a fit for purpose charitable model. The charity has a transparent vision on successfully providing relief to each cause.
Follow your donations through our social media accounts. See and feel the inner-peace that you have helped achieve by putting a smile on someones face which is a form of charity itself.
Water is the most basic need for civilisation to stay alive. In parts of the world where clean water is taken for granted and a luxury, thalassemia relief aims to change that. With your donations we can help deliver safe clean drinking water for people to prosper and endure a healthy lifestyle. It will be water that gives them people with no water hope women a sense of relief with sanitised water, children and adults and elderly to access the fresh water to prevent them catching disease.
Water coolers
The heat in many underprivileged countries causes severe dehydration and as many as 1 million people die every year due to the lack of water or clean water. Thalassemia relief will be installing certified standing water coolers for use of the general public so that they can have access to fresh clean cold drinking water. A water cooler pump has the capacity of providing over 100 litres of fresh clean water per hour and will be accessible for the needy to use.
Donate a water cooler for £400
Employment Assistance
Thalassemia relief will be working around the clock to structure a system to transition people and impoverished communities from a destitute position to a self sustainable independent progressive life long position. Addressing the underlying causes and understanding what causes such atrocious harsh circumstances in the 21st century where people in the same society face inequality beyond belief. There vill be a tremendous task a head that needs to be taken on and sophisticated effort will be required to achieve the ultimate goal of helping people to start making positive and everlasting changes to their lives.
A sophisticated plan will be put in to action with partnering with other local partners to open a skills training academy. With sectors of jobs in certain fields being aplenty there is to many low skilled unqualified people. This will be the beginning of a effective process in tackling the issue of unemployment and poverty.
Teachers/ lecturers from specialised academic backgrounds literacy and numeracy to skilled labour will all be involved in providing the skills and education which is needed in the least fortunate poor societies. With a plan underway to provide sets of multiple classes everyday in related subjects furthermore in depth long term job transition programme will be set up not just to get individuals in to work but support them long term with in the job sectors they take or change to give them relevant skills and experience which will create longterm sustainable successful employment.
Thalassemia relief has waiting lists for other causes such as shelter, medical aid, water project, education and employment support. Without your generous donations nothing is possible, your donations are mores needed than ever to make it in to a realty.
Employment Assistance
Thalassemia relief will be working around the clock to structure a system to transition people and impoverished communities from a destitute position to a self sustainable independent progressive life long position. Addressing the underlying causes and understanding what causes such atrocious harsh circumstances in the 21st century where people in the same society face inequality beyond belief. There vill be a tremendous task a head that needs to be taken on and sophisticated effort will be required to achieve the ultimate goal of helping people to start making positive and everlasting changes to their lives.
A sophisticated plan will be put in to action with partnering with other local partners to open a skills training academy. With sectors of jobs in certain fields being aplenty there is to many low skilled unqualified people. This will be the beginning of a effective process in tackling the issue of unemployment and poverty.
Teachers/ lecturers from specialised academic backgrounds literacy and numeracy to skilled labour will all be involved in providing the skills and education which is needed in the least fortunate poor societies. With a plan underway to provide sets of multiple classes everyday in related subjects furthermore in depth long term job transition programme will be set up not just to get individuals in to work but support them long term with in the job sectors they take or change to give them relevant skills and experience which will create longterm sustainable successful employment.
Thalassemia relief has waiting lists for other causes such as shelter, medical aid, water project, education and employment support. Without your generous donations nothing is possible, your donations are mores needed than ever to make it in to a realty.
Thalassemia relief will invest into resources and academics to bring about further new up-to date on treatments for beta thalassemia and join in international research institutes to test, license and introduce safe cure treatments. This can only be achieved with your long term support.
Volunteer
Why Not Volunteer?
It is unimaginable to see people begging for must have necessities such as medicine, food, water, shelter, energy, clothes etc. This is the sad reality for far too many people in these poverty stricken countries. It is a upsetting and shameful reality children go to sleep without food, the sick die due to no medicine and treatment.
Why not do your part and join thalassemia relief with your free time to volunteer. Come and help us support these causes to bring hope to the people in need.
At any moment where there is a person is need, there is always a opportunity for charity to make a huge difference.
Would You Like To Help?
Please contact us and show your support in any which way.
Become a volunteer?
Just fill out your details and Provide the town or city you live in and which other areas of the uk you can volunteer/fundraise in?
Your assistance will be much appreciated.
“The best of you are the ones who bring out the greatest in others”
Register To Become A Volunteer
Contact Us Today & We Will Get Back To You Regarding Our Upcoming Projects.
Donations
Please Donate BIG, SMALL, Every Donation Counts
Thalassemia Relief wants to see plenty of people smiling, provide them with all necessities and treatments they need in life. Please support our causes and projects and follow your donations on our website via our social media accounts. Even as little as a pound is donated by each person on our website would provide life saving treatment, education, ,food, financial support, water and accommodation.
Thalassemia Relief works endlessly to help achieve our aims, causes and projects. This is only possible with your generous support.
Please Donate Today
You can make a secure donation here.
Please give as much or as little as you can. Every penny given goes to life saving treatments and necessities to the poor and needy .
The Prophet. Muhammed salla Allahu alayhi wa sallam said:
“ The charity you give will be your shade on the day of Judgment”
Contact Us
Contact Us Today & We Will Get Back To You.
- 01274 009575
- info@thalassemiarelief.org
- 19 Overton Drive, Bradford, BD6 3NE
- 01274 009 575
- info@thalassemiarelief.org
- 19 Overton Drive, Bradford, BD6 3NE
